I suspect it had been leaking for a long time, as I felt no different; however, my recovery from long runs took longer than in the past (old age?). Males are affected 3:1 compared to females. The use of a less invasive transcatheter therapy in this . Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. Join Vanity Fair to receive full access to VF.com and the complete online archive now. However, my problem is that if I can train at this pace then I can still run but I certainly cant compete! I am 51 and leaning towards a tissue valve because of my activities and that I am a firefighter. 1. Celebrities With Heart Disease - Celebrity Heart Health Survivors. I dont doubt there is variability in recovery among athletes who have operation for AVR and aortic replacement. E. G. I could bench 50lbs with no need to strain and hold my breath, which wouldnt result in a massive spike in blood pressure, but if I tried to bicep curl 50lbs it would do. I have some issues with a dull pain right below my left breast that seems to come more often with a poor dietbut just doesnt seem like it could me esophagus related? 2023 Cond Nast. Im wondering if you can advise me. I wouldnt hesitate to register your concern with your sons doctor about waiting a few weeks. It seems to be a very interesting option for those who have aortic dilatation due to Marfan or BAV (which is my case). (liver cysts noted). You are correct that we worry about the influence of such activities on the enlarged aorta in those with BAV. Thats the main reason for choosing a tissue valve in my case. There is a readable section related to BAV. Bicuspid aortic value ppg 24 mmhg Soccer is his only sport and his passion- he plays on his high school team and a travel team. Aortic stenosis, the narrowing of the aortic valve. Valve replacement with either a tissue (bioprosthetic) valve or a mechanical valve is, by far, more common. Thanks! Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. I recently also did a 24hr EKG (holter) which was fine. An abnormal aortic valve develops during the early weeks of pregnancy, when the baby's heart is developing. I was running 9 to 10 minute miles. I lifted weights for many years and spent almost all my life in physically demanding jobs. What activities can I do? Thanks. California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. Is a CT or MRI absolutely necessary for measuring the aortic diameter? I would like to know more about your recovery timeline since you are so much further out from surgery than I amfor instance; how long before you could do long rides again; when could you do tempo efforts; start high heart rate intervals; and finally race again? Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. Thank you for your expert opinion. Questions currently remain about how long such repairs will last and whether patients might require re-operation at some point in the future. Jeffrey Howell didn't know he was born with a bicuspid aortic valve until December 2015. Thank you for taking the time to respond to everyones concern. Like I said, peoples experiences are all different. You should discuss this possibility with your doctor(s). Consensus guidelines suggest that athletes with mild aortic regurgitation and no other heart problems can participate fully in their sports. What signs should I look out for? However, randomized, controlled trials have excluded bicuspid aortic valve (BAV), which is the most frequent congenital heart disease occurring in 1% to 2% of the total population and representing at least 25% of patients 80 years of age or older referred for aortic valve replacement. Next year I would like to finish my first marathon but now I dont know whether I should keep running. Im 32 years old and back in 09 I discovered I have a BAV. All rights reserved. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. Im a 30 year old male who is currently living in Asia with family. You could probably settle on a plan for return to exercise with your surgeon and cardiologist. I am wondering because I know that weighlifting with bav isnt so good I feel terrible because i lov weightlifting and I have build a body that is so difficult for a 18 years old. You would never know meeting these celebrities that they had a CHD. My cardiologist has told me that, based on how my heart sounds, he doesnt think hell ever have to operate on me. Keep us posted! So I saw an incredible surgeon and we are going for the Ross Procedure in Feb. Now that we know the type of surgery does this improve my chances or one day returning the CrossFit addicted life I miss? For these individuals, provided there is no other relevant heart disease, it may be appropriate to have follow-up echocardiogram and/or CT scanning every 2 years. ANYTHING other than walking and golf? I dont believe there is any evidence that would help us know if some forms are safer than others. A 2019 report suggests that bicuspid aortic valve disease is the most common congenital heart valve problem, affecting between 0.5 and 2 percent of the general population. The Best Amazon Presidents' Day Deals of 2023. Background: Transcatheter aortic valve implantation (TAVI) has achieved satisfactory outcomes in the selected patients with bicuspid aortic valve (BAV), predominately type 1 BAV (~90%). Im less certain about how BAV, coarctation, and history of VSD repair might impact ones current top-end performance. An echocardiogram last June revealed a function BAV. "The 1997 heart valve replacement was never meant to be permanent," stated Daniel Ketchell, a spokesman for Arnold. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); He isnt interested in anything else. They dont know they have it [It] leaks blood. These differences of opinion may be legitimate. In the 2.5 years from surgery, I returned back to riding within the first 3 months and later back to longer, decent training pace rides and racing but feel like I have lost my top end mojo. After finding out about her heart disease, Braxton stopped eating unhealthy foods at night. 1 year ago I gave up smoking and started endurance running. Thanks for the infoI really appreciate what you,have to say. The other theory is that there is a structural problem that leaves the aortic wall weak. Hi Sean, Functionally bicuspid aortic valve (type 1). is my lack of top end performance indicative of someone with BAV & aortic coarctation? Probably wise to follow the advice of your doctors who know the details of your situation. Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). Or usually lead a normal life? And lastly, the degree of healing in the remaining (unoperated) aorta probably has a big impact on the potential risk. Will surgery mean I can do more or less training? Should I be doing push-ups/pull-ups? Robbie Benson - Actor/Director - Bicuspid Aortic Valve. As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. My son is 15 years old, he was born with BAV /aortic stenosis. At the age of 12, she had a procedure to widen her valve as her heart condition continued to have an impact. There are just so many causes of shortness of breath, lightheadedness, and chest pain.even besides the heart-related causes. Doctors at the Frankel Cardiovascular Center's Comprehensive Aortic Program have . Sounds like youre on the right track with your upcoming visit with a specialist. How long does it take for the homograft to completely heal? My heart seems to heal, so that speaks well for my future.. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. Enlarged ascending aorta 42-43 mm Substitute valves. Benefits: long-term durability. With aortic root 39mm. A total of 25,556 newborns (51% male; mean age, 12 days) underwent echocardiography. Context Bicuspid aortic valve is the most common congenital cardiac anomaly in the adult population. To save nice heart the best would be doing nothing (! Its a hard thing to describe to my cardiologist that my legs and HR are not cooperating when the pace picks up. That said I have a resting HR of ~40 (always have). Thank you to every doc and nurse on my team!". The more common form of bicuspid aortic valve occurs in a valve with three cusps with . And my wife is screaming at me every time I try to exercise :)). Any guidelines? On Aug 30, 2017 I passed out at the gym and subsequently airlifted due a large abscess and valve dehisence and underwent another operation and now have a homograft. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. Mild aortic valve disease without symptoms may only require frequent health checkups. Patients need operation if there is severe stenosis or regurgitation of the aortic valve.or if the nearby aorta becomes moderately enlarged. What should i do? On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. While I recovered from surgery just fine, my return to my normal activity levels has been hampered by recurring arrhythmias, muscle atrophy during recovery, medication,and general inability to exert myself like I could prior to surgery. The doc says the big risk is due to the blood thinners. Thank you,dr Creswell, I would like to thank you very much for providing me with your thoughts. My father has struggled with heart disease since he was 50, and I lost him [in 2008].. Assuming that 2% of the US population has bicuspid aortic valve disease, that is 6,278,281 people. I have severe aortic stenosis with no signs or symptoms. triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase?